bebés prematuros

Hoy hablamos de BEBÉS PREMATUROS

Cuando Marian del blog Diario de una madre del siglo XXI me propuso hablar sobre bebés prematuros (desde su propia experiencia), me dio miedo no hacerlo bien. Es un tema muy delicado y que a muchas de nosotras se nos pasa por la cabeza en el momento del embarazo. Pero Marian lo trata de forma tan dulce y normalizada que estoy segura de que aprenderemos mucho con su experiencia. Aquí os dejo con ella. ¡Que disfrutéis la entrevista!

Me llamo Marian, tengo 37 años y soy madre de dos niños: uno de 3 años y medio y otro de casi 2. Soy periodista y en la actualidad ejerzo como freelance, y, como no me puedo estar quieta, estoy haciendo el doctorado en Filología Hispánica, aunque mi pobre tesis va muy despacito. Abrí mi blog, Diario de una madre del siglo XXI, hace año y medio para compartir mi experiencia como madre, ya que necesitaba un lugar de desahogo tras el nacimiento prematuro de mi segundo hijo. Con el tiempo el blog fue evolucionando y, además de maternidad, hablo de mi otra gran pasión: los libros. Sobre todo de literatura infantil, pero de vez en cuando también de alguna de mis lecturas. A veces me planteo abrir un segundo blog dedicado a los libros, pero, de momento, la vida ya no me da para ocuparme de tantas cosas.

1. Marian, descríbeme en tres palabras tu vida como madre.

¿Sólo tres? Con lo que me gusta enrollarme… Bueno, allá van: aprendizaje, felicidad… y… cansancio.

2. Hoy vamos a hablar de un tema difícil pero necesario: los bebés prematuros. Explícanos tu experiencia.

Es un tema muy duro y, aunque a veces he hablado de él en el blog, nunca lo he contado entero. Hoy compartiré con vosotros una versión (reducida) de mi experiencia. Cuando estaba en la 30ª semana de embarazo, sufrí un desprendimiento de placenta, por lo que tuvieron que hacerme una cesárea de urgencia.

Entre otras cosas, mi bebé, que pesó 1,5 kilos, nació con la enfermedad de la membrana hialina debido a que sus pulmones estaban poco desarrollados. Durante la primera semana estuvo muy grave y los médicos nos prepararon para lo peor, porque no parecía capaz de salir adelante. Sufría apneas muy prolongadas, tuvo una hemorragia pulmonar y cada vez era más difícil rescatarle. Creo que jamás he llorado y sufrido tanto como entonces. Incluso ahora, cuando os lo estoy contando, se me vuelven a saltar las lágrimas. Por suerte, mi hijo es un luchador y, gracias a la ayuda de un equipo médico infatigable, los “episodios” se fueron reduciendo hasta desaparecer. También el resto de aspectos fue a mejor. Dos transfusiones de sangre, no sé cuántas radiografías, electrocardiogramas, una punción lumbar… Al pobrecito le hicieron de todo. Estuvo casi dos meses en Neonatos, pero cuando salió de allí era un niño sano. Con tendencia a sufrir enfermedades respiratorias y un serio retraso madurativo, al que poco a poco vamos ganando la partida, pero sano.

3. ¿Te planteaste en algún momento del embarazo que esto podía pasar?

Nunca. Tuve un embarazo normal, a excepción de un leve sangrado en el primer trimestre, al que los médicos no dieron importancia. De hecho, jamás pudieron decirme a qué se debió el desprendimiento de placenta, ya que no cumplía ninguno de los parámetros por los que suele darse. Me tocó, simplemente. Jamás pensé que me podría encontrar en esa situación, al igual casi ninguna de las madres de las que conocí en Neonatos. Cada una estaba allí por un caso distinto, pero sólo una sabía de antemano que su embarazo, que era de riesgo, podía terminar junto a una incubadora.

4. Una vez tienes a tu pequeño en los brazos ¿cómo llevas personalmente esta nueva situación? ¿Y tu pareja?

Mi hijo estuvo con un respirador diez días. No pude cogerle en brazos hasta que se lo quitaron, sólo tocarle. Tenía tanto miedo a que se fuera sin haberle cogido en brazos ni una vez… En cuanto los médicos nos dieron permiso para cogerle en brazos sentí una alegría indescriptible. Mi marido estaba aterrado. Era tan pequeñito y tenía tantos cables y vías… Tuvimos la inmensa suerte que nuestro hospital era maravilloso. Neonatos estaba abierto las 24 horas del día para los padres, se practicaba el Método Canguro y todo el personal sanitario fomentaba la lactancia materna. Incluso en nuestro caso, con el peque sedado y con un tubo respiratorio, nos ayudaron un montón y mi pequeño sólo se alimentó con leche materna desde el principio (las primeras dos semanas por sonda).

Creo que todo eso fue fundamental para la recuperación de mi hijo y, cuando con casi dos meses y poco más de 2 kg. de peso nos fuimos a casa, estábamos felices y asustados. Porque la cosa no acababa al salir de Neonatos, sino que empezaba un nuevo período marcado por revisiones médicas, pruebas y rehabilitación, además de los cuidados normales de un bebé.

Me preguntabas por mi pareja. Pues tengo que decir que mi marido es un héroe. Con mi hijo mayor siempre pensé que era un padre estupendo, pero después de esta experiencia, en la que cuidó de todos nosotros con tanto cariño y dedicación, creo que es el mejor padre y marido del mundo.

5. Por lo que he leído en tu blog, ya eras madre de un pequeño cuando pasasteis por este momento. ¿Cómo llevaste el hecho de tener a tu hijo pequeño en el hospital y al grande en casa?

Fue muy difícil. La mayoría de los padres que estaban en Neonatos eran primerizos, así que prácticamente vivían allí, sobre todo las madres. Iban a casa el tiempo justo de dormir unas horas, darse una ducha y cambiarse de ropa. Yo tenía que compaginarlo con el cuidado de otro niño y eso lo complicaba todo. Por suerte, la familia se volcó. Las abuelas y los tíos fueron la mejor ayuda y mi marido y yo nos turnábamos para estar con ellos, aunque todo fue aún más difícil cuando a él se le acabó la baja por paternidad. Recuerdo vivir con una sensación de culpa constante: por no dedicarle más tiempo al mayor o por no estar junto al pequeño y dejarle “solito” en el hospital. Encima el mayor, que aún no tenía los 2 años, no entendía nada. El bebé había llegado, pero él no lo había visto. Papá y mamá todo el día fuera de casa, él de mano en mano y, como los niños son muy perceptivos, notaba la preocupación y la tristeza. Todo eso tuvo sus consecuencias en mi hijo mayor, claro, que se manifestaron posteriormente en unos fuertes celos, aunque ahora adora a su hermano pequeño.

6. Cuéntanos como fue el momento en el que dijiste: ¡mi bebé está perfecto!

Bueno, a nivel de salud mi bebé está perfecto desde que salió de Neonatos y eso da una gran sensación de alivio.

Pero las secuelas de los bebés prematuros siguen después del hospital. Quiero subrayar eso, porque parece que siempre que hablamos de prematuros la gente cree que, una vez salidos de Neonatos, ya son como cualquier otro niño y no es así.

Cada uno en grado distinto, claro, pero casi todos los niños con los que coincidí en Neonatos han tenido que hacer algún tipo de rehabilitación (ya por no hablar de otras cuestiones médicas). El bebé no ha tenido tiempo para desarrollarse del todo y eso puede implicar un retraso en el desarrollo físico y/o cognitivo. En el caso de mi hijo, hemos asistido a rehabilitación en un Centro de Atención Temprana hasta esta misma semana, que le han dado el alta, por lo que estamos de celebración. Los bebés prematuros, según dicen los profesionales, tardan entre 2 y 3 años en “ponerse al día” con los nacidos a término, no sólo en el peso, sino también en el desarrollo. Ha sido un trabajo duro, pero es un luchador y lo ha conseguido. En casa estamos tan felices que no tengo palabras para expresarlo.

7. Ahora tu niño pequeño ya no es tan pequeño (ya tiene más de año y medio si no me equivoco) y está perfectamente. ¿Qué le dirías a todas las madres que están pasando por un momento como el tuyo?

A los padres que están ahora mismo junto a una incubadora quiero enviarles todo mi cariño y decirles que mantengan la esperanza y la fuerza. Esos niños, que parecen tan frágiles, son unos luchadores de primera. Sé que, dentro de las diferencias de gravedad de cada caso, siempre es duro. Ningún padre está preparado para ver a su hijo en una incubadora, rodeado de máquinas y cables, y escuchar angustiosos partes médicos. Ni para llegar a casa con una cuna vacía, dejando a su pequeño en un hospital, aunque sepa que en ese momento es donde debe estar. En Neonatos hay mucho dolor, confusión y tristeza, pero también mucho amor. Y es necesario aferrarse a ese amor para afrontarlo.


El peque de Marian es un valiente y un luchador, al igual que toda la familia. Muchísimas gracias por querer compartir este momento tan duro con nosotros y mostrar una parte de ti que sé que no debe ser fácil. ¡Cada día estoy más contenta con esta sección! ¡Un abrazo muy muy fuerte Marian!

¿Conocías a Marian? ¿Que te ha parecido la entrevista? ¿Conoces algún caso de bebé prematuro? 

172 comentarios en “Hoy hablamos de BEBÉS PREMATUROS

    1. De verdad que me sacáis los colores. Lo importante es que todos tomemos consciencia de que esto puede pasar y poder afrontarlo de la mejor manera posible. Y de nuevo, ¡me alegro muchísimo que a tu pequeño ya le hayan dado el alta! ¡Un abrazo fuerte!

  1. Que dura y que bonita entrevista!! me ha encantado.
    Conozco dos historias de bebés prematuros, una de final feliz y otra no.

    La verdad es que deben ser momentos muy duros y el sentirte arropada y apoyada por todo tu entorno debe ser muy importante.

    Saludos

    1. A mi también me ha gustado mucho hacer esta entrevista. Es un caso que nunca esperes que te pase a ti… pero pasa. Y Marian lo explica de forma tan delicada… ¡Un abrazo!

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  65. Apple at present includes Rhapsody as an app, which is a Wonderful get started, still it is at present hampered via the incapacity to retailer domestically upon your iPod, and contains a dismal 64kbps bit price tag. If this variations, then it will considerably negate this advantage for the Zune, but the Ten music for each month will even now be a massive as well as in Zune Pass’ prefer.

  66. I’ll gear this review to 2 types of people: current Zune owners who are considering an upgrade, and people trying to decide between a Zune and an iPod. (There are other players worth considering out there, like the Sony Walkman X, but I hope this gives you enough info to make an informed decision of the Zune vs players other than the iPod line as well.)

  67. Hiya, I’m really glad I have found this information. Today bloggers publish only about gossips and net and this is actually frustrating. A good web site with exciting content, that is what I need. Thank you for keeping this site, I will be visiting it. Do you do newsletters? Can not find it.

  68. Pretty section of content. I just stumbled upon your site and in accession capital to assert that I get in fact enjoyed account your blog posts. Any way I will be subscribing to your feeds and even I achievement you access consistently fast.

  69. Apple now has Rhapsody as an app, which is a great start, but it is currently hampered by the inability to store locally on your iPod, and has a dismal 64kbps bit rate. If this changes, then it will somewhat negate this advantage for the Zune, but the 10 songs per month will still be a big plus in Zune Pass’ favor.

  70. The fresh Zune browser is remarkably Fantastic, but not as Wonderful as the iPod’s. It will work perfectly, however isn’t as instant as Safari, and consists of a clunkier interface. If on your own occasionally plan upon using the website browser that’s not an issue, nonetheless if you might be coming up with in the direction of examine the net alot against your PMP then the iPod’s much larger display screen and improved browser may well be major.

  71. Apple now has Rhapsody as an app, which is a great start, but it is currently hampered by the inability to store locally on your iPod, and has a dismal 64kbps bit rate. If this changes, then it will somewhat negate this advantage for the Zune, but the 10 songs per month will still be a big plus in Zune Pass’ favor.

  72. The new Zune browser is surprisingly good, but not as good as the iPod’s. It works well, but isn’t as fast as Safari, and has a clunkier interface. If you occasionally plan on using the web browser that’s not an issue, but if you’re planning to browse the web alot from your PMP then the iPod’s larger screen and better browser may be important.

  73. I will tools this evaluation toward Two styles of All those: present-day Zune home owners who are thinking of an up grade, and people today seeking in the direction of choose amongst a Zune and an iPod. (There are other gamers relevance thinking of out there, like the Sony Walkman X, nonetheless I hope this features on your own enough facts in the direction of create an informed selection of the Zune vs avid gamers other than the iPod line as well.)

  74. The Zune concentrates on being a Portable Media Player. Not a web browser. Not a game machine. Maybe in the future it’ll do even better in those areas, but for now it’s a fantastic way to organize and listen to your music and videos, and is without peer in that regard. The iPod’s strengths are its web browsing and apps. If those sound more compelling, perhaps it is your best choice.

  75. This is getting a bit more subjective, but I much prefer the Zune Marketplace. The interface is colorful, has more flair, and some cool features like ‘Mixview’ that let you quickly see related albums, songs, or other users related to what you’re listening to. Clicking on one of those will center on that item, and another set of “neighbors” will come into view, allowing you to navigate around exploring by similar artists, songs, or users. Speaking of users, the Zune “Social” is also great fun, letting you find others with shared tastes and becoming friends with them. You then can listen to a playlist created based on an amalgamation of what all your friends are listening to, which is also enjoyable. Those concerned with privacy will be relieved to know you can prevent the public from seeing your personal listening habits if you so choose.

  76. If you’re still on the fence: grab your favorite earphones, head down to a Best Buy and ask to plug them into a Zune then an iPod and see which one sounds better to you, and which interface makes you smile more. Then you’ll know which is right for you.

  77. Between me and my husband we’ve owned more MP3 players over the years than I can count, including Sansas, iRivers, iPods (classic & touch), the Ibiza Rhapsody, etc. But, the last few years I’ve settled down to one line of players. Why? Because I was happy to discover how well-designed and fun to use the underappreciated (and widely mocked) Zunes are.

  78. Apple now has Rhapsody as an app, which is a great start, but it is currently hampered by the inability to store locally on your iPod, and has a dismal 64kbps bit rate. If this changes, then it will somewhat negate this advantage for the Zune, but the 10 songs per month will still be a big plus in Zune Pass’ favor.

  79. Hands down, Apple’s app store wins by a mile. It’s a huge selection of all sorts of apps vs a rather sad selection of a handful for Zune. Microsoft has plans, especially in the realm of games, but I’m not sure I’d want to bet on the future if this aspect is important to you. The iPod is a much better choice in that case.

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  81. Hands down, Apple’s app store wins by a mile. It’s a huge selection of all sorts of apps vs a rather sad selection of a handful for Zune. Microsoft has plans, especially in the realm of games, but I’m not sure I’d want to bet on the future if this aspect is important to you. The iPod is a much better choice in that case.

  82. I’ll gear this review to 2 types of people: current Zune owners who are considering an upgrade, and people trying to decide between a Zune and an iPod. (There are other players worth considering out there, like the Sony Walkman X, but I hope this gives you enough info to make an informed decision of the Zune vs players other than the iPod line as well.)

  83. This is getting a bit more subjective, but I much prefer the Zune Marketplace. The interface is colorful, has more flair, and some cool features like ‘Mixview’ that let you quickly see related albums, songs, or other users related to what you’re listening to. Clicking on one of those will center on that item, and another set of “neighbors” will come into view, allowing you to navigate around exploring by similar artists, songs, or users. Speaking of users, the Zune “Social” is also great fun, letting you find others with shared tastes and becoming friends with them. You then can listen to a playlist created based on an amalgamation of what all your friends are listening to, which is also enjoyable. Those concerned with privacy will be relieved to know you can prevent the public from seeing your personal listening habits if you so choose.

  84. I am extremely inspired together with your writing skills and also with the layout to your blog. Is that this a paid topic or did you modify it your self? Either way stay up the nice high quality writing, it’s rare to peer a nice weblog like this one nowadays..

  85. I’ll gear this review to 2 types of people: current Zune owners who are considering an upgrade, and people trying to decide between a Zune and an iPod. (There are other players worth considering out there, like the Sony Walkman X, but I hope this gives you enough info to make an informed decision of the Zune vs players other than the iPod line as well.)

  86. I’ll gear this review to 2 types of people: current Zune owners who are considering an upgrade, and people trying to decide between a Zune and an iPod. (There are other players worth considering out there, like the Sony Walkman X, but I hope this gives you enough info to make an informed decision of the Zune vs players other than the iPod line as well.)

  87. Hands down, Apple’s app store wins by a mile. It’s a huge selection of all sorts of apps vs a rather sad selection of a handful for Zune. Microsoft has plans, especially in the realm of games, but I’m not sure I’d want to bet on the future if this aspect is important to you. The iPod is a much better choice in that case.

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